Hello folks,
Time for another quick update for you!
Things have been pretty steady this year, with just maintenance appointments for the boys to do with their kidneys, ears and eyes.
We have a big meeting on Wednesday at St James' hospital. The boys are soon going to transition from children's to adult renal care. I'm sorry that we will be saying goodbye to the lovely Dr Finlay, but now that Joe's almost 18, he has to move to adult care and it makes sense for Evan to move over at the same time. Adult renal is at a different hospital to the children's service and we don't really want to be having appointments at both.
The other big change is that because the boys are the patients, the doctors won't automatically speak to me and James any more. As the boys have got older, Dr Finlay has been very good at speaking to them directly about their care, but up to now we have always been in the room. This will change when they move up to adult renal. I feel that this is the biggest change because neither of the boys are especially forthcoming when it comes to telling us things! Even important things. So I am a bit nervous about no longer being in the loop in the same way. Although I expect the boys will have to learn to communicate more about their health because we will be involved in helping them with matters such as diet and, eventually, dialysis and transplants. So Wednesday is a big day as we get to meet the people who will be caring for our boys. They have their final meetings with Dr Finlay this year and then from that point onwards, it will be new doctors and a different hospital to visit.
In other news, as we are slowly moving out of lockdown, I'm looking for a new job. You may remember that I was offered a job early in the new year. Sadly it fell through and I never even got started. However, I have an interview on Monday for a job I really want. So fingers crossed for me at 10am please!
